THE LONG OVERDUE BOOK
ON DEALING & HEALING WITH CHRONIC ILLNESS
Holding It All Together
When You're Hypermobile
Achieving a Better Life Experience with
EDS, POTS, & Joint Instability
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A patient perspective on living well with chronic illness.
Get a glimpse into
the #1
best-selling
book on managing life with hypermobile Ehlers Danlos syndrome, dysautonomia or POTS, and joint instability issues! Check out the first chapter in the preview (left).
Patients are crowdsourcing the care when the medical system can't meet their needs. Empower your recovery with a realistic and solutionary approach that helps when doctors can't. You can learn to transform your illness into wellness using advice from decades of knowledge from medical professionals, personal patient stories other industry expert advocates' experience.
REVIEWS & TESTIMONIALS
Fellow EDSer
Daphne Wright
It is a perfect combination of encouragement, resources, and strategies to help navigate the challenges faced when trying to make sense of a myriad of symptoms which baffle most providers! It needs to be put into the hands of everyone that deals with EDS; including patients, providers, family members, & friends of this dazzle of "Zebras" who want to understand the complexities of living in a body that is this unpredictable.
EDS Parent
Amazon Reviewer
I would highly recommend it to those who are just learning about Ehlers Danlos, who think they or someone they know might have it, or who is feeling plateaued in their progress. There were things I hadn't considered, suggestions I made note of, and validations I didn't know I needed.
Online Book Club.org
Young Reader
I implore everyone experiencing any form of chronic illness, even if it isn't EDS, to pick up a copy of this book. I believe it will be a life-changing experience for you. The book will help you manage the fear, uncertainty, pain, and exhaustion that come with chronic conditions and firmly put you on the path to the most comfortable and empowering life you can live.
Get downloadable ebooks from the author, including an ebook on how to get properly diagnosed with hypermobile Ehlers Danlos Syndrome (hEDS).
ABOUT
"I always just thought I was good at yoga!" says the author before she learned of her hypermobile EDS diagnosis 17 years later. Christie Cox’s groundbreaking new book enables invisible chronic illness patients, caregivers and loved ones to move from pain to possibility. Teaching through a shared patient perspective, Christie helps readers and clients learn effective healing habits to restore stability, regain control over their body and mind to get back to living their best life. This book features simple, accessible tips anyone can follow to feel better, calmer, stronger, and happier.
The Ultimate Guide to Dealing with Chronic Illness
In Holding It All Together, Christie Cox offers an in-depth exploration of invisible chronic illness like hypermobile Ehlers Danlos Syndrome (hEDS). After facing and learning to manage the many life-altering changes that accompany chronic illness, Christie discovered that many different medical stories carry the same burdens - emotional, physical, financial.
EDS and hypermobility are no longer rare, but rarely diagnosed. A global community of support is growing, and the disease is becoming more recognized - thought to be now 1 in every 500. For other medical Zebras suffering with hEDS, this book shares a proven path to help you overcome, to achieve wellness and peace with the diagnosis.
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Gain access to personal interviews with expert doctors (list below).
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Network with support and advocacy groups in EDS, POTS, & hypermobility.
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Consider lessons learned by fellow Zebras, reflection questions, and quotes to inspire your search for answers.
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Tap into the miracle of the modern mindset with Christie’s original prescription.
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Discover Christie Cox’s own inspiring story and how she learned to live her best life possible despite chronic illness.
This book will show you it’s okay to believe you can overcome the struggle with incurable and often painful chronic illness. Caregivers and loved ones can also develop compassionate understanding with an understandable education, leaving them better equipped and empowered to support your journey.
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If you or someone you love has been diagnosed with an incurable chronic disease—even if it's not EDS—this thoughtful, meticulous guide is the perfect companion, offering real help when you need it most. Coming from a unique peer/patient perspective of the toll in facing a dismissed and disbelieved diagnosis, Christie Cox has painstakingly collected advice from leading global non-profit leaders who are fellow patients, included here to help you find answers to decrease the time to diagnosis averaging over 14 years.
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The book explores the basics of hypermobile EDS, it's common comorbidities, tips on getting diagnosed, coping strategies, lifestyle changes, and tons of other resources on how to get help. It also delves into the future of scientific medical research, in search of tools for earlier diagnosis and treatment, and how to foster a positive mindset in the face of despair. Ms. Cox provides the tools needed to get back to work or school, build confidence with medical insights from specialists, and empower yourself with knowledge that will change your life for the better.
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Be sure to check out my free resources for EDS Warriors!
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WHAT READERS SAY
I've never felt so understood! It was like talking to a good friend who finally heard me and was able to give me tools to cope. Christie is an inspiring person!
The advice for coping with chronic illness is a down-to-earth and practical approach. She is positive but not sugar coating the challenges.
She doesn't want her pain and struggle to make her a victim. She wants her battle to make you someone
else’s hero. She reminds me that I got this!
SPECIAL EVENTS
Speaking
Opportunities
"Dealing with Disease"
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"Helping Patient Advocates
Be Heard"
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"Protecting Your Energy"
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EDUCATING Future doctors
Speaking and partnering with medical students on awareness of rare chronic pain and disease
Advocating Congress
Support rare disease legislative and funding with members of Congress on the Hill
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Q&A FEATURED WITH EXPERTS INSIDE
EDS Medical Specialists
Dr. Sunil Patel
Neurosurgeon, Medical University of South Carolina (MUSC)
Dr. Chip Norris
The Norris Lab researching hypermobile Ehlers Danlos Syndrome (hEDS), MUSC
Dr. Cortney Gensemer
Norris Lab (has hEDS)
Dr. Amanda Miller
Progress Physical Therapy (speciality in hypermobility)
Dr. Eric Singman
Professor of Ophthalmology, Neuro-ophthalmologist, University of Maryland Medical School and Former Chief of the Wilmer Eye Institute at Johns Hopkins
Industry Leading Advocates
Lauren Stiles
President and Co-Founder, Dysautonomia International
Lara Bloom
President, The Ehlers Danlos Society
Dorothy Poppe
President, Bobby Jones Chiari & Syringomyelia Foundation
Gwenn Herman
Clinical Director, US Pain Foundation
Trisha Torrey
Founder, The Alliance of Professional Health Advocates
Camille Schrier
Miss America 2020 (who has EDS)
Ben Glass
Long-term disability lawyer, Ben Glass Law
Transcripts of all expert Q&A interviews are available via buttons above. Use the password "ZebraStrong!"
TRAILER
AUTHOR BIO
Christie Cox
Author, advisor and advocate
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Christie Cox was always bendy and sometimes witty. It wasn’t until she was properly diagnosed with Ehlers Danlos Syndrome at 48 years old that she understood her quirkiness. Following decades of unrecognizable and untreatable health issues, since learning of her condition she has gone from being disbelieved to determined. Ms. Cox now devotes her focus, energy, and passion to supporting others facing a similar fate.
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Learn more about Christie, or to access her free patient resources and to engage with her inspiring patient health advocacy, visit her business website where she and her team of advocates can help you research, prioritize, and plan your path to wellness at www.journey2joyous.com. You can access her other ebooks here -free to download.
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