Join the zebra dazzle to be heard!
Another JOINT EFFORT of EDS advocates, providers, and patients will publish a community newsletter. Subscribe to follow their progress with EDS S.H.A.R.E.- a collaborative EDS newsletter powered by patients for patients.
Free resources including the guide Dear Loved One. This guide is for anyone who might need help asking for help or teaching caregivers and loved ones on how to better support them better during tough times.
You can also expect to receive...
A couple of times a month, you'll receive resources relative to living with chronic illness like Ehlers Danlos Syndrome (EDS) and its common comorbidities like Postural Orthostatic Tachycardia Syndrome (POTS). Plus stay up-to-date on blogs, watch webinars from leading experts, and access other helpful resources for managing life with EDS.
As someone who struggles with chronic, incurable and untreatable illness, she hopes you can use a few of her favorite tools like her free editable medical preparation templates as her way of saying thank you for subscribing! She knows part of holding it all together is being organized and ready for doctor appointments and keeping your brain fog at bay. These resources helped her and she hopes they help you too.
This book is for anyone who has ever struggled with chronic pain, life-altering illness or hypermobility issues. Christie has dedicated her life's purpose to helping others and she is a passionate writer and patient advocate who has lived with chronic disease for decades. She knows the struggle of finding answers, providers, treatment and sometimes even finding hope. It took her 17 years to be correctly diagnosed, and experienced firsthand the limitations it has imposed, and the isolation it has brought. This book is long overdue.
If you would find it helpful to receive simple reminders for building good wellness habits and living your best life with EDS… then follow her too.
While healing may seem like a solitary act, it can become so much richer when one is immersed in an active, supportive community. That’s why she founded Journey2Joyous to provide a special place for people seeking a better quality of life beyond illness.