839359050370495 Media Impact for her hEDS/HSB book with guest speaking, podcast and more to share Holding It All Together when You're Hypermobile book
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Impacting the community

I am one patient trying to change the future of our disorder. I encourage you to engage in the community of patients, providers, advocates and more who are coming together in a "joint effort" (pun intended) to help hypermobile people. 

Getting the word out to influence the future of medicine

Press release and media attention our influence earned.

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Response from the community 

The patient community responded quickly to the news of a new resource by ranking the new book a #1 New Release on Amazon and achieving a best seller rank within 48 hours. 

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Guest appearances

I had the privilege of joining the "Spoonies With Purpose" podcast with Julie Holliday. See the interview on YouTube. 

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